Update on surgery scheduling

I guess because of the stress this morning I developed a migraine...I took a nap and woke up about 1:30. The surgery scheduling department still hadn't called me. I called surgery scheduling and the neurosurgeon's office to find out the status of when surgery on Monday would be so that I could schedule child care. No one at surgery scheduling even KNEW that my surgery was cancelled this afternoon. Grh! I called the neurosurgeon's office back and reamed them a new a$$ telling them that I have a special needs child that requires quite a bit of coordination to schedule care and I need to know NOW! As rude as this woman at the office was...someone will be losing her job in time for Christmas if I have my way. (OK, I didn't report her...yet...but she was rude telling me that it wasn't my business to get them moving on this...that my job is to stay healthy and calm down and let them do their job).

I did finally get a call from surgery scheduling this evening just before 5pm (when they close). I am on "standby" for Monday. They are not sure what time I will be scheduled but may know over the weekend, but they have assured me that Monday it will happen. The lady I spoke to at surgery scheduling was very nice and understanding and said the OR may call me over the weekend and if they don't she will call me first thing when she arrives on Monday morning to let me know if they have a definite time. I just have to be ready to go anytime from 6am to midnight to be there within an hour's notice (I live 30 mins from the hospital as long as it's not snowing!). However, even if it's scheduled for midnight on Monday (Tuesday?) I have to be ready with an empty stomach on a moment's notice...that means no food or drink after midnight on Monday (Sunday?)...LOL

I am not necessarily happy with it, but it's a better answer than I've had all day. Andrew is a little worried that they will rush through the surgery though and chance making a mistake (a knick in the wrong place could cause me to lose my vision, or even my life since it's touching the stem of my pituitary gland and near the cartoid artery). I am in touch with some people who are just planning to come over at 6am on Monday and plan to stay through Tuesday or when they hear from Andrew.

This means only two respite days for Harley are being wasted, but I really have no choice if I want it done by Christmas. Andrew was able to call his job and explain what was going on so they put him back on the schedule for this weekend and then extended his time off through Friday (to return to work on Saturday)--where before he was scheduled to return on Thanksgiving day. Hopefully I will be released on Friday because if they wait til Saturday it will have to happen on OUR schedule instead of theirs...

it's been a very long emotional day. Thankfully we had/have some people "on call" that are willing to run errands, do transportation, childcare for the younger children whenever needed. The people who were / are bringing meals were very understanding and one even brought over a cooked meal tonight so I wouldn't have to cook.

Now my sweet dear husband is telling me that it is good because we now have time to clean the carpets...so guess what I will be doing tomorrow afternoon? or maybe tonight if I can't sleep...

Thanks for checking in...Hopefully I'm not boring you all to death with my long, whiny posts!