Tttttthhhhhaaaatttt's ALL folks!

Follow up on my Visual Field Test

Ah, finally heard back from my eye dr--after two phone calls and two emails!

The visual field test was actually better than the one done before surgery...the glaucoma isn't any worse so we're not going to treat it...just keep an eye on it (haha, that's a pun!)...

and that my vision issues are just a matter of the aging process...

So that just proves my refusal to drive...is all in my head and is just a fear I need to get over!

That's all GOOD news...

Visual Field Test today

Not expecting to receive any news...don't even get to see a dr!! The Dr will call with the results and if he feels it's necessary another appt to follow up. I am so sick of this game...no one can tell me what's wrong with my vision. I've already had the standard eye exam where it showed I don't need glasses...so why is my acuity so messed up?

I am still not comfortable driving (especially in this snow!)...I feel so awful for the rest of my family. Am I using it as a cop out or is it really something wrong?

I mean sure the dr said something about having the Pigmentation Dispersion syndrome, but from what I understand there are drops he could give me to treat it...so why isn't he doing that?

GRH! I hate not having answers.

It may be time to Import and Delete

I was thinking of importing this blog into my Harley blog and just deleting this one....

or is it easier still at this point to keep the two blogs separated for the readers?

If you are only reading here for my health updates and don't really want to read all the other crap going on...maybe I should leave this one?

I just don't know what to do?!

More appointments...Moving on...

I was able to schedule my visual field test...I told the receptionist that I wanted to speak with the dr and asked if I could make that appt now but she said no, you get the visual field test and THEN make an appt to see the eye dr after those results are in...ugh...I really want to talk with him about it all NOW! Oh well, what's another week and a half right?

So that appointment is on Monday and hopefully I will get to speak with the doctor if not see him (at this point I think they are just racking up my copays...that will be $70 in copays for two visits!). I'm sure the doctor will say "sure you're fine to drive" because they just don't seem to understand what is going on with my eyes. I just can't trust myself...

Am I overreacting? Maybe subconsciously I really just don't want to drive? My life sure has been a little easier not having to drive to Creative every day...

A better update...

Neurosurgeon: Everything looks good, pain should stop by July/August when I see him again. We may repeat MRIs once a year from this point out. Cleared of restrictions "as I feel fit" (WTH does that mean?). Showed me MRIs in great resolution and explained how things were and are...pretty cool! Said to expect fatigue, especially "what mom with 5 kids isn't?" (I guess he didn't understand I didn't have this much fatigue before surgery). He thinks I may have overdone it during my initial recuperation period and that is why recovery is going so slowly.

Endo/Bloodwork: Cortisol came by 15.5. Dr wanted it over 10, so he feels all is good. I emailed and asked him if sleep deprivation and stress would adversely affect the results (read that in the health encyclopedia that is attached to my lab results)..and the fatigure is fierce for me right now...we'll see what he says but I figure it'll all be good...I don't have to see him til Dec 2010 or Jan 2011.

Vision: since it's now proven my vision issues are not related to the tumor, I am now going back to the eye dr to see if they can figure what it is or if it's related to the pigmentation dispersion syndrome (usually progresses into early glaucoma)...hoping I can have that appt accomplished by the end of next week.

Driving: well with the vision issues I've not been driving although the dr has released me to do so (not the eye dr, just the neurosurgeon). I did drive the 5 mins to get my blood draw today and it gave me a massive headache trying to focus that long and move my head at the same time, so I am sticking with a self-imposed driving restriction.

SO all in all it was a good day!! Day One DOWN! Feeling good, exhausted, but good...Made it through fairly stress free...even took some time to play outside with my boys...It was such a nice day here we didn't even need jackets!!

*sigh* Doctors' orders

I get to the lab in time for my 8AM blood draw...and the order for the blood draw is not in there?! They had to call the doctor's office...so my blood wasn't drawn til 8:30...hopefully he will call me today with the results (last time he called me at 3 in the afternoon after a 10AM draw). Then hopefully I will have a better idea of if I'm going to have to do more testing or not and can follow up while I'm there today seeing the neurosurgeon.

Update later...