Feeling "Off"

I never made it here to do the update on what happened at my appointment yesterday....I put the update about Zac's appointment on my other blog....I wonder if I should just start combining the two blogs now? I don't think this one will go forever...Maybe I'll wait until I feel like recovery is actually accomplished or I get answers otherwise?

I went to the doctor thinking I had cellulitis again..it started the exact same way and in some of the same places. I get there and they actually, for a change get me in right away..(of course, because I had also checked into the lab for my bloodwork for the endo)...I found that I've put all the weight back on...and I'm beginning to notice hair loss so now of course I am overthinking that I may have a thyroid problem...I'm sure it's all in my head...but we'll find out soon enough I suppose....

Back to it...My appointment...The PA comes in...of course I my PCP insisted I HAD to come in on Monday and of course, once again she did not have anything open for me to see her personally...this is the 5th appointment I've had at her insistence that I've not been able to get in to see her...The PA looks it over and says "do you live alone"? I don't understand why this question is important at ALL?! She explained that she was wondering if I lived with anyone because it could rule out if this rash was contagious...No, I don't live alone...I have five children and a husband and no, no one else has a rash...so that rules that out...she decides that I have 'dermatitis' and 'foliculicitis' (sp? - ingrown hairs?!)....Ok, well she already knew I had psorasis so I'm not sure where the dermatitis is a necessary diagnosis in thsi case...whatever...she gives me a script for an antibiotic and a topical ointment cream and suggests I take Claritin for the itching...I asked her about that though because the neurosurgeon's told me not to take anything until after my post op appointment on Friday. She knew nothing about it and said she felt it would be just fine, but if I'm not sure if he would allow it, to call him and ask before I actually take it. *sigh* I get to the pharmacy and they asked if I wanted to refill my Percocet...sure I say...he says OK, I need the written script...It's in the comptuer but I can't fill it without the paper slip...which I don't have yet. I talked to the neurosurgeon's office though and they are sending it by interoffice mail to the Lakewood Pharmacy so that I don't have to drive all the way downtown to get the written slip. It should be there tomorrow. I've cut back on the percocet...I still have 3 or 4 pills left..which isn't too bad. I've been able to stretch my time between doses to 5 to 6 hours, but I found that if I take only 1 at a time then it lasts maybe 2-3 hours.

As I said, I have been feeling "off" for a couple of days. It seems my vision is getting worse, especially in my right eye this week. I can't help but wonder if it's from the swelling or if it's not even related to the brain surgery? I have to get my visual field test redone, the opthomologist suggested getting it done in January after surgery...I will ask the neurosurgeon on Friday if I should wait or not. I know with pigmentation dispersion syndrome (which is a secondary diagnosis at this point as to my vision loss) it is treatable with eye drops and other medications if it's caught early enough...well with the waiting after the neurosurgery it may turn into "not" early enough...I need to wait til I have more medical leave saved up before I can afford to undergo another surgery! Especially eye surgery...

I was looking forward to getting my ability to drive back on Friday when I go to the dr...but I don't think I'll be comfortable with driving with the problems I've been having with my eyes...BUT it is putting an incredible amount of strain on Andrew having to try to keep up with my schedule and his AND all the driving...

Looking forward to my appointment Friday anyhow...hoping I can get some copies of the MRI or the video of the actual surgery...I'm not sure if Kaiser will release that kind of stuff, but I'm hoping I can get my hands on something....

Got to go.