Saturday, January 9, 2010

How my appointment went...

It went well...I hate that he was in such a rush...but I have to see him again soon.

I asked him about release to work and he asked if I felt I could...I explained thatI felt I could do it just fine...and the things that require bending can be done by my husband, so he released me to work.

We discussed that I am still having the visual issues with my right eye and how the issues I am having are not consistent with the brain tumor...so he wants me to get an MRI ASAP and then see him 2 days later for the results. So far as the visual field test, he feels I should hold off on that until after we've had the next MRI because there may be something else going on with my visual cortex and we may be able to see it now that the tumor is out of the way...(BTW: my visual field test results are not consistent with the pigmentation dispersion syndrome either -- well not ALL of the symptoms I am having)...

He asked about my teeth...I said they are either numb or hurt...he says "I promise that will improve"...that's fine...the roof of my mouth is still swollen too and again he says "it will improve". That's fine...I have to stay on the prednisone until further notice...

He says I have bounced back and am doing amazing but he can tell I've overdone it. I told him I am just now realizing how important it is to stick to the restrictions...bending still hurts and feels like my brain is gonna fall out my nostril...he says "that's normal" continue to take it easy and listen to your body...Which I will do!

Even though Tricia picked up my prescription for percocet on Thursday, he went ahead and gave me a new written one yesterday for when I need it. I told him that I have been taking 2 at a time but have been able to increase from every 4 hours to every 5-6 hours. He's says "that's excellent"....

When we talked about the earaches and headaches he said he'd heard of patients complaining about the headaches, but never an earache from the saline...I told him I don't know for sure that is what is causing the ear pain but it feels like water being trapped in my ear so I am assuming it's from the saline...he thinks maybe the MRI will give us an idea of what is going on there...He said if the saline is giving me instant headaches to just stop using it...although at this point I am finally getting some relief of being able to breathe through my nose using the saline...he said it's up to me if I want to deal with the headaches or the breathing...

I got some pictures while I was at the doctor yesterday with my camera phone...we were having so much fun (just Andrew and I!)...However, he has my phone so I have to wait til he gets home and then I'll post the pics here (or maybe my other blog?)...

So that's my update...

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